Everyday utensils and tools are made with the able-bodied in mind. So for kids with Epidermolysis Bullosa (butterfly skin) these new products can make a real difference in their quality of life.
The condition leaves sufferers with skin that blisters and peels. Another common symptom is Syndactyly, where the digits of the hands and feet fuse together. Debra Chile, a foundation dedicated to treating Chilean patients with Epidermolysis Bullosa commissioned Chilean designer Joaquin Rosas to design a collection of products that respond to the challenges of the condition.
Rosas, a graduate of Universidad Católica, came up with Make Care. The 3D-printed objects – a cup, bowl and arm attachment – are specially designed to make adolescent sufferers of Epidermolysis Bullosa more autonomous in their day to day lives.
Because of their extremely fragile skin, these teens aren’t able to hold an ordinary spoon, lift a cup or move a plate. But the attachments make these movements that much easier, giving back some of their agency.
The Bienal de diseño 2017, a design biennial in Chile, recognised the collection in the category of specialised products for industry, science and other productive sectors. As part of this year’s theme, the design biennial celebrates design that responds to “alert”.
Rosas’ project has also been nominated for the INDEX: Award 2017. Aligned with the United Nations’ sustainable goal, the award recognises over 1000 designs from 85 countries.